Freedom through mobility

Disability

Benjamin Ramo enjoys the freedom offered by his wheelchair.
Benjamin Ramo enjoys the freedom offered by his wheelchair.

by Lucy Norris

Benjamin Ramo is 60 years old and lives in Gilbert Camp, Malaita, in the Solomon Islands. Nine years ago Benjamin developed diabetes. After experiencing long-term complications with septicaemia (blood poisoning), he eventually lost his right lower leg when it became infected and had to be amputated.

Benjamin received a prosthesis (false leg) and, after receiving physiotherapy, was able to get around with the support of crutches. As time passed, Benjamin found that he needed a wheelchair to move around more easily indoors and to relieve pressure ulcers caused by the prosthesis.

Benjamin’s situation is common in developing countries where even accessing a wheelchair can be a challenge. The World Report on Disability estimates that 15 per cent of the world’s population live with some form of disability, therefore appropriate wheelchair provision is very important. The World Health Organization estimates that 10 per cent of the disabled population require a wheelchair; that amounts to 105 million people worldwide.

In response to this need, the World Health Organization (WHO) published Guidelines on the provision of Manual Wheelchairs in less resourced settings (See page 5 for more on the guidelines). These guidelines give important recommendations targeted at wheelchair services and others involved in wheelchair provision to ‘promote personal mobility and enhance the quality of life of wheelchair users’.

As well as promoting better quality wheelchairs and improving the way users receive wheelchairs, the guidelines cover policy and planning at national level for creating sustainable wheelchair services.

Appropriate, good quality wheelchairs

To meet the WHO Wheelchair Guidelines, wheelchairs must address individual needs. Firstly, the wheelchair must fit the user. If a wheelchair is too big, the user will not be able to wheel independently. If it is too small, it may cause stunted growth, scoliosis (bending of the spine) and pressure ulcers. A wheelchair without the right support can particularly affect children with cerebral palsy, making it hard for them to eat, drink or sit upright.

Secondly, it must also suit the user’s environment. If the terrain is difficult, the wheelchair must be able to overcome obstacles and not tip over. To prevent life-threatening conditions like pressure ulcers, an appropriate cushion must be provided with the wheelchair.

Wheelchair services 

The best way to make sure that wheelchairs are right for the user is to set up a wheelchair service. The service can provide assessment, prescription and fitting of the right wheelchair. The wheelchair service can also provide a follow-up, maintenance and repair service for the user, as well as teaching users how to use ramps, get over obstacles and learn to navigate difficult terrain. These skills can really increase people’s confidence, helping them to become more independent. Current wheelchair users are usually best placed to pass on such information to new users.

What is a pressure ulcer? 

A pressure ulcer starts as a red mark on the skin and can become a very serious deep wound that usually occurs in bony areas such as the hips, seat bones and ankles. Infected ulcers are one of the leading causes of death of people with disabilities in low-income countries. A pressure ulcer occurs when an area of skin becomes damaged, causing the tissue to die because of lack of blood flow to that area – this can be caused by pressure, friction, stretching, trauma or moisture. Pressure ulcers can take up to a year to heal, and if left untreated the ulcer will become infected and can lead to death. Yet, pressure ulcers are relatively easy and in-expensive to prevent. A simple pressure relief cushion can save a wheelchair user’s life.

Restored mobility

Wheelchairs can enable people to live mobile lives despite their disability, making them more likely to work and to participate in community life. Instead of being isolated and often dependent on carers, they can have greater freedom to participate in community life.

Lucy Norris is Programme Development Support Officer at Motivation UK. Their mission is to enhance the quality of life of people with mobility disabilities around the world by addressing their survival, mobility, empowerment and inclusion. 
Motivation has provided training in over 40 countries including Malawi, South Africa, Tanzania, Uganda, Sri Lanka and the Solomon Islands. Email: info@motivation.org.uk  Website: www.motivation.org.uk


Resources



Common pressure-sensitive areas. Illustrations courtesy of Motivation UK
Common pressure-sensitive areas. Illustrations courtesy of Motivation UK